Emily Muller established herself as a prominent activist in the rare disease community when she launched Emily’s Fight, an awareness campaign, at the age of thirteen. Although she never expected her passion project to gain an international following, she tries to put it to good use. Emily is unafraid to talk about taboo subjects and frequently addresses young adult issues and the mental health effects of serious illness. She has spoken at events such as TEDx, the Global Genes Patient Advocacy Summit, SHINE, Starlight Children’s Midwest Gala, and Rare Disease Week on Capital Hill. She is a contributor of written work to Alt Philanthropy, The Mighty, and To Write Love On Her Arms, and she takes photos for Alt Philanthropy and the SPACE blog. In the health policy field, Emily worked tirelessly on the 21st Century Cures Initiative and was eventually recognized by the United States Energy and Commerce Committee when the bill was signed into law. An avid lover of film, Emily also appeared in her first speaking role in a series when she had a few lines in Shameless.
Currently Emily is splitting her time between the United States and the United Kingdom to attend the University of St Andrews. She is pursuing a degree in International Relations and Social Anthropology and hopes to inspire the next generation of passionate advocates to change the world.